Victoria Graham: belleza con coraje

Victoria Graham es una joven de 22 años que hace poco fue coronada como Miss Frostburg por la Organización Miss Estados Unidos. Cumple todos los requisitos que exigen los concursos de belleza, pero debe vivir con el síndrome de Ehlers-Danlos (SED), una enfermedad genética rara que afecta sus tejidos conectivos y produce que sus articulaciones estén muy sueltas.

 

You have this one life, how do you want to spend it? Apologizing? Regretting? Questioning? Hating yourself? Running after people who don't want to see you? Be brave. Believe in yourself. Do what feels good. Take risks. You have this one life - make yourself proud. #ButYouDontLookSick #MakingInvisibleIllnessesVisible #MissFrostburg #MissMaryland #MissAmerica #DailyQuote #Baltimore #FedHill #LillyPulitzer #InvisibleIllness #ChronicIllness #Spoonie #SpoonieStrength #MedicalZebra #MysteryDiagnosis #EhlersDanlosSyndrome #ChiariMalformation #SpinalFusion #Dysautonomia #BeatTheOdds #ChangeTheWorld #myfrostburg

Una publicación compartida de Victoria Graham (@victonation) el 26 de Oct de 2016 a la(s) 7:24 PDT

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I hurt. I've been poked and prodded; cut open only to be stitched back together. I've had my bones held together in various ways, ways in which my own body has failed to do. I take medication, wear braces, and undergo tests and images. I smile, I try my best, but at the end of the day I simply hurt. Too much, I hurt, too much.

Read more!

Una publicación compartida de Victoria Graham (@victonation) el 12 de Ago de 2016 a la(s) 6:41 PDT

 

- Dear Doctor, You will never know how terrifying it is to know something is wrong with your body and to not have the people who are supposed to help you believe you. - #butyoudontlooksick #makinginvisibleillnessesvisible #medicalzebra #zebrastrong #mysteryillness #photoofday #spooniestrength #ehlersdanlossyndrome #invisibleillnesswarrior #chiarimalformation #brainsurgery #spinalfusion #advocate #chronicillness #invisibleillness #beyourownsuperhero #changetheworld #bethechange A wonderful thank you to @lewincreativegroup for capturing this photo at the @ehlers.danlos #baltimore Zebra Rally!

Una publicación compartida de Victoria Graham (@victonation) el 24 de Jul de 2016 a la(s) 5:18 PDT

Victoria Graham es una joven de 22 años que hace poco fue coronada como Miss Frostburg por la Organización Miss Estados Unidos. Cumple todos los requisitos que exigen los concursos de belleza, pero debe vivir con el síndrome de Ehlers-Danlos (SED), una enfermedad genética rara que afecta sus tejidos conectivos y produce que sus articulaciones estén muy sueltas.

 

You have this one life, how do you want to spend it? Apologizing? Regretting? Questioning? Hating yourself? Running after people who don't want to see you? Be brave. Believe in yourself. Do what feels good. Take risks. You have this one life - make yourself proud. #ButYouDontLookSick #MakingInvisibleIllnessesVisible #MissFrostburg #MissMaryland #MissAmerica #DailyQuote #Baltimore #FedHill #LillyPulitzer #InvisibleIllness #ChronicIllness #Spoonie #SpoonieStrength #MedicalZebra #MysteryDiagnosis #EhlersDanlosSyndrome #ChiariMalformation #SpinalFusion #Dysautonomia #BeatTheOdds #ChangeTheWorld #myfrostburg

Una publicación compartida de Victoria Graham (@victonation) el 26 de Oct de 2016 a la(s) 7:24 PDT

Read more!

 

I hurt. I've been poked and prodded; cut open only to be stitched back together. I've had my bones held together in various ways, ways in which my own body has failed to do. I take medication, wear braces, and undergo tests and images. I smile, I try my best, but at the end of the day I simply hurt. Too much, I hurt, too much.

Read more!

Una publicación compartida de Victoria Graham (@victonation) el 12 de Ago de 2016 a la(s) 6:41 PDT

 

- Dear Doctor, You will never know how terrifying it is to know something is wrong with your body and to not have the people who are supposed to help you believe you. - #butyoudontlooksick #makinginvisibleillnessesvisible #medicalzebra #zebrastrong #mysteryillness #photoofday #spooniestrength #ehlersdanlossyndrome #invisibleillnesswarrior #chiarimalformation #brainsurgery #spinalfusion #advocate #chronicillness #invisibleillness #beyourownsuperhero #changetheworld #bethechange A wonderful thank you to @lewincreativegroup for capturing this photo at the @ehlers.danlos #baltimore Zebra Rally!

Una publicación compartida de Victoria Graham (@victonation) el 24 de Jul de 2016 a la(s) 5:18 PDT